Re Occuring Graves Is Ruining My Life! - Personal Stories - Living with Graves Disease

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Re Occuring Graves Is Ruining My Life!


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#1 Brooky30

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Posted 06 November 2011 - 01:54 AM

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I got diagnosed with Graves disease in April 2010.I was 29...By the time i was diagnosed it was a relief..my hair was brittle,my heart raced all the time,I was skin and bone and couldnt catch a breath.I had probably had it for at least 18 months before because i noticed my left eye used to swell.I was so insistent there was something wrong with it.I went to a facial specialist,eye doctor and even had an MRI on my head but nothing was found.In April of this year I came off my medication on my own due to the fact life was good.My test results had been normal and i was due to be discharged from the 6 weekly endocrinoligist hospital visits.I had run out of neo carbizamole after being taken down to one tablet a day so i didnt bother getting anymore.Big Mistake to not monitor this.I now find myself in November and after absolutely being depressed,suicidal and with extreme anxiety i have the results of my blood test back showing my Graves has come back! This disease is ruining my relationship..my thoughts are so clouded i cant even explain to my partner how im feeling.Every conversation turns to an argument which makes my symptoms worse.He wants to try and help me but he can't which he's finding is driving him mad.I have completely lost the plot ,especially last night where i nearly took myself to the hospital because i was having a major meltdown and wanted to hurt myself,crying ,vomiting.My behaviour is awful..I keep telling my partner im sick im sick but pretty soon he's going want me out for good.I get to the point where i want to smash things im so frustrated but really theres nothing that bad going on to want to make me do this but its how i feel.Im back on 2 tablets a day for 2 days now...all i want to do is to feel like myself again..i have trouble leaving the house and im so sad...nobody understands unless they have it...its debilatating and depressing and i dont feel like ive got anyone to talk to so thats why im here..i feel like everythings going to be ok when my meds kick in but i dont even feel like im going to make it until then..i will probably go mad!!




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#2 mmztcass

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Posted 06 November 2011 - 01:42 PM

Hi:

 

I'm sorry you are having difficulties.

 

This is the personal stories section where people share their Graves' Disease success stories.

 

If you would highlight, copy, and paste what you type into the Graves' Disease and Thyroid Discussion under the Forum Topics, you'll reach more people this way.

 

Also please post your lab results with the lab ranges so we can better help you.

 

{{{hugs}}} :)



#3 patient50313

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Posted 13 November 2011 - 10:22 PM

I got diagnosed with Graves disease in April 2010.I was 29...By the time i was diagnosed it was a relief..my hair was brittle,my heart raced all the time,I was skin and bone and couldnt catch a breath.I had probably had it for at least 18 months before because i noticed my left eye used to swell.I was so insistent there was something wrong with it.I went to a facial specialist,eye doctor and even had an MRI on my head but nothing was found.In April of this year I came off my medication on my own due to the fact life was good.My test results had been normal and i was due to be discharged from the 6 weekly endocrinoligist hospital visits.I had run out of neo carbizamole after being taken down to one tablet a day so i didnt bother getting anymore.Big Mistake to not monitor this.I now find myself in November and after absolutely being depressed,suicidal and with extreme anxiety i have the results of my blood test back showing my Graves has come back! This disease is ruining my relationship..my thoughts are so clouded i cant even explain to my partner how im feeling.Every conversation turns to an argument which makes my symptoms worse.He wants to try and help me but he can't which he's finding is driving him mad.I have completely lost the plot ,especially last night where i nearly took myself to the hospital because i was having a major meltdown and wanted to hurt myself,crying ,vomiting.My behaviour is awful..I keep telling my partner im sick im sick but pretty soon he's going want me out for good.I get to the point where i want to smash things im so frustrated but really theres nothing that bad going on to want to make me do this but its how i feel.Im back on 2 tablets a day for 2 days now...all i want to do is to feel like myself again..i have trouble leaving the house and im so sad...nobody understands unless they have it...its debilatating and depressing and i dont feel like ive got anyone to talk to so thats why im here..i feel like everythings going to be ok when my meds kick in but i dont even feel like im going to make it until then..i will probably go mad!!

 

This is what has helped me A LOT!! I have not been on thyroid medicine for over a year now and my Endo doctor knows everything I've been taking for supplements and recommends that I continue doing what I'm doing since it's keeping my T4 and T3 levels in normal range.

 

1. I stopped consuming aspartame products. Once I did this I no longer could tolerate my thyroid medicine. Aspartame and my thyroid were not getting along at all. Aspartame (marketed under a few different names) is in hundreds of products in your grocery store so it's easy to overconsume. Mainly if you drink diet pop, flavored water, add artificial sweetner to your coffee or ice tea, eat yogurt, low calorie fruit juice, etc you could be over consuming.

 

2. I started taking L-Carnitine (fumerate form worked best for me). Started w/ 500 mg one a day and then went to 500 mgs twice a day until my levels were in normal range. If you a mild hyperthyroidism you may only need 500 mg. This supplement has the same benefits as your thyroid medicine without all the side affects. Truly!!!! My hair stopped falling out.

 

3. I started taking Milk Thistle to help with the inflammation and oxidative stress. I was amazed on how much this helped the inflammation around my eyes. Made a world of difference!

 

I hope this helps you as well as it has helped me. Good luck. Also, here is my graves disease story. http://mygravesdisea...ry.yolasite.com







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